I’m proud to contribute to the Australian MND Clinical Guideline as a member of the Lived Experience Advisory Group. My connection to MND spans generations — both my grandmother and father lost their lives to the disease, and I carry a known genetic mutation. This lived experience fuels my advocacy across national and international spaces, where I work to unite those impacted by familial MND, amplify our perspectives, and share the hope I see emerging through research and community-led change. Through this project, I hope to help embed the voices of those with genetic and familial experience into the foundation of meaningful, inclusive care.
I’m a teacher by profession, and an artist and explorer by nature. Whether through creativity or conversation, I’m passionate about building understanding, fostering connection, and helping others feel seen and supported.
