Taryn is a member of the Lived Experience Advisory Group as a carrier of the c9orf72 genetic mutation and the Research and Policymaker Advisory Group. She is also trained in health promotion and library and information sciences and currently works as a health librarian at the University of Notre Dame. Taryn has expertise in systematic review search design and support as well as evidence gathering for clinical guidelines and is honoured to be contributing to the development of the MND guidelines.
