My journey with Motor Neurone Disease began in 2021, when my beloved mum was diagnosed with Bulbar-onset MND. Over nearly five years, I stood by my Mum’s side through every challenge; navigating the aged care system, advocating for her basic needs, and witnessing firsthand the systemic gaps that leave so many families unsupported. It was a path marked by love, resilience, and heartbreak, one that changed my life forever.
In August 2024, I joined the MND Australia Lived Experience Network (LEN) to honour Mum’s legacy and help ensure no family feels alone in this fight. Since her passing in November 2024, I’ve continued to advocate with compassion and purpose—amplifying the voice of lived experience through roles such as the Lived Experience Advisory Group (LEAG). I remain deeply committed to building a future where every MND-affected family feels heard, supported, and treated with the dignity they deserve.
